Edin Synergy supported Organization for Rare Diseases India(ORDI) in conducting Racefor7 - a Marathon to bring awareness about the 7000 rare diseases and to collect funds for the poor afflicted with rare diseases.
Race for 7 Marathon held at Balarama Gate, Mysuru Palace, Mysuru on 03 March 2019.
The marathon was flagged off by His Highness, The Maharaja of Mysore, YaduveerKrishnadattaChamarajaWadiyar.
ORDI founded in Feb 2014, setup as a section 25 non-profit company in India is a patient-centered organization with the mission to improve health of patients with rare diseases around India through awareness, advocacy, collaborations and information dissemination. ORDI represents the collective voice of all patients with rare diseases in India to effect government policy making. ORDI has identified the grand challenges faced by rare diseases community in India and is committed to systematically and holistically address these challenges. Our approach is to engage with key opinion leaders and rare disease experts nationally and internationally to design and implement innovative programs for the benefit of stakeholders in India.